Poetic Spiriuality

Poetic Spiriuality
"Let there be light."
Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts

Friday, July 19, 2013

No Pedestals Please

I have MS, and I have chosen to do my best 
To give life my all ... Nothing less.
I didn't choose to have a chronic illness
I certainly wouldn't try to will this.

But, strength is not something you choose
Until choice is something you lose.
Someone told me today that I've made such a great decision
In my mind it didn't take much vision.

When pain becomes a daily part of life
And I can either cry or rise above,
I can easily become a burden to those I love.
To me there stands only one clear choice
I have to live my life with a smile and an activist's voice. 

©Sheryl A. Skutelsky, 2013. All rights reserved.

Thursday, July 18, 2013

Understanding Brings Empathy


Exercise, exercise, exercise ... Avoid stress. Very wise words, but then have you ever tried to stay calm while you explain to the person at the pharmacy on your way home from the gym just why you can't remember your own birthdate? All part of fatigue and cognitive confusion from MS.


Wednesday, October 17, 2012

Fix MS Now

Visit and like the Facebook page, Fix MS Now
http://www.facebook.com/fixmsnow/
for more info and to help raise Multiple Sclerosis awareness.



.Sheryl's MS video

National MS Society Blog: Developments in Treating Cognition

National MS Society Blog: Developments in Treating Cognition: New studies are helping us understand why many people living with MS have cognitive challenges, how we measure cognition and what we can do ...

Tuesday, October 16, 2012

National MS Society Blog: Will we all develop progressive MS?

National MS Society Blog: Will we all develop progressive MS?: Julie Stachowiak, PhD Writer, ms.about.com   This is a question that lurks in the minds of many people diagnosed with relapsing-remittin...

Finally some good news about getting old
Not only are we wiser, more intuitive and bold,
But MS won't make us hostage to its nasty hold.

Wednesday, August 8, 2012

Surfing the Waves

I've been reading an almost daily Facebook post of late
From someone who seems to believe that life is entirely fate.
I've read over and over from this Facebook "friend"
That she is anxiously awaiting the day that her life will end.

Now, like so many, I've never even met this person, but I find
That her sadness has been laying heavily on my mind.
She says that her lot in life is so heavy and she is often so tired
That she has already tried to leave this world before her time here has expired.

I want to take a moment to tell you what I wrote to her,
Just in case anyone else finds that their life has become such an awful blur.
I've lived for over fifty years now through many an up and down,
And I've found that life is like surfing waves
While trying valiantly not to drown.

My Facebook "friend" said she believes this world is "a hell full of hatred, apathy, and distress,"
And she has no problem leaving here for a better place that's not a mess.
I even read a comment saying that there are more people than we know that feel the same way,
So, I felt the need to comment to tell my "friends" what lights my flame.

I pray that each of us can find our way to the gifts that are hidden all around,
Because I'd hate to see anyone miss the positive that can definitely be found.
While so many are busy hoping for the next life where promises exist,
We only have the reality of this moment which can so easily be missed.

I don't think we can really appreciate the highs without the low,
Nor, can only living the easy life allow many of us to spiritually grow.
While sharing negative thoughts allows us to completely empathize,
Sharing positive thoughts and love is the root of how we survive.

So, again, I pray ... no matter your upbringing or religion ... that each of us learns to live in the now,
For this very moment is the only real reality that our brains are wired to allow.
Yesterday will be ingrained in our memories, different for all that observe,
While tomorrow is just a vision of the future that we hope to deserve.

Try to remember, just like surfing the waves and awaiting the next
None of us can really predict the future and what we can expect.
It's the wave we worry the most about that never seems to come our way,
Causing us to waste our precious energy worrying, while we go astray.

So ride the high of the moment, or choose to learn something from the low.
Allow your spirit to surf in the moment, because most likely we were put in this crazy ocean to grow.
We can anticipate the promised next life in the religion and belief we've been taught,
But we should try to not miss each and every moment because looking back life always seems too short.

We all own strength we sometimes only find when put to the test,
But, please don't miss the high moments while worrying about the rest.
I personally hope to sense without any doubt or fear,
That I became a better individual by always staying positive just in case the end is near.

Maybe one day I'll actually find that it is true,
That I can once again connect with the loved ones that I knew.
But until that time let each of us keep on surfing every up and down wave to the shore,
While living in the light of the moment so that we can learn to share the lessons of love others might choose to ignore.

© Sheryl A. Skutelsky, 2012. All rights reserved.


Wednesday, July 18, 2012

What is it about Animal Lovers?

Found it very interesting that I asked for a favor today,
And, help arrived in the most unexpected way.
The help wasn't even for just myself,
But to raise awareness for MS which affects my health.

First I sent out requests to the people I know well,
The response was poor, as you probably could tell.
Then, I sent requests to all the Facebook dog lovers that I know,
The response each day continues to grow.

So, what is it about fellow animal lovers
That makes their compassion seem to rise above the others?
Is it perhaps that animal lovers learn from the pure spirit
Of the animals that gift them with such love so beyond any limit?

Thank you my "friends" for coming through to like the new "Fix MS Now" Facebook page.
And thank you from all of us that fight the MS battles that rage.
Multiple Sclerosis, and all of the autoimmune diseases out there,
Sometimes leave the sufferers wondering if people really care.

Once again the kindness of strangers reminds me of what it should be about.
Instead of the unnecessary violence that makes us scream and shout.
Keep spreading the love, pure and unconditional just like our pets.
Then each of us can leave this lifetime without feeling any regrets.

© Sheryl A. Skutelsky, 2012. All rights reserved.

http://www.Facebook.com/fixMSnow